Children With Rare Diseases

[jeevan]

I Photograph Children With Rare Diseases To Encourage People To Look Beyond Their Condition. I want to break down barriers and allow people to really get to know the person and not just their condition. The project I am working on at the moment specifically looks at rare diseases and is called the Rare Project.


Matthew is totally in love with football, it’s his passion



He has Crouzon syndrome and has a cochlear implant.


Elisabeth loves to dance and has recently started ballet lessons



She was born as a twin at a gestation of 23 weeks and 4 days. She weights 1lb 4.5 ounces. After 3 months it was discovered that she had developed hydrocephalus (water on the brain) probably caused by a small brain hemorrhage.